We raise awareness and share our story whenever possible to help find a cure awareness is our biggest motivator.”Īdriana loves going to church with her Nana and spending time with all of her friends. Making others smile and find the light at the end of the tunnel brings us joy. We stay strong through this to help others to ensure others can smile. Even when she was in chemo from her optic glioma, she would always make sure the other kids got the toys they wanted to play with and that the nurses and doctors were happy too. “Adriana has always been strong from day one and she is always more concerned about the wellbeing of those around her. You just never know what to expect and every new bump or mark you wonder, is that normal, or is this a new plexiform? Every behavior, is this normal or from her medicine? Unfortunately it impacts us in negative ways too, you just never know and every time you think you’ve got a handle on things, something new pops up and brings you back to the realty that is living with NF. We have met so many amazing people because of NF that we are so grateful for because they understand and are a great support system. “NF impacts our lives in both negative and positive ways. It turned out to just be a severe cold, but the doctor noticed all these spots on her body (café au laits)and referred us to a neurologist. “Adriana was about 8 months old when we took her to the doctor because she was sick.
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